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Conditions & Support Groups

 

National Associations
 

Acoustic Neuroma Association
Provides information and support to patients who have been diagnosed with acoustic neuroma, including symptoms for early detection, frequently asked questions, and treatment options.

600 Peachtree Parkway
Cumming, GA 30041
info@anausa.org

American Brain Tumor Association
Among a wide range of information concerning brain tumors is their "Primer on Brain Tumors," an online booklet designed to help patients, friends, and family members better understand brain tumors.

2720 River Road
Des Plaines, IL 60018
847-827-9910
Fax: 847-827-9918
Patient Line: 800-886-2282
info@abta.org

Brain Tumor Foundation for Children
Provides emotional and informational support for families of children with brain tumors.

6065 Roswell Rd., NE, Suite 505
Atlanta, GA 30328
(404) 252-4107          
Fax: (404) 252-4108

Brain Tumor Society
The network of brain tumor patients, survivors, and their families provides access to psychosocial support, information and resources.

124 Watertown Street, Suite 3H
Watertown, MA 02472
1.800.770.TBTS (8287) 
Fax 617.924.9998

Elekta
This site from the manufacturers of the Gamma Knife provides information on Gamma Knife and stereotactic neurosurgery, as well as links to patient resources.

International Radiosurgery Support Association
Provides patient information and resources concerning Gamma Knife and Linac stereotactic radiosurgery. Features include an overview of radiosurgery, Q&A, patient stories, and a search application for treatment centers.

3005 Hoffman Street
Harrisburg, PA 17110

National Brain Tumor Foundation
NBTF is a national non-profit health organization dedicated to providing information and support for brain tumor patients, family members, and healthcare professionals, while supporting innovative research into better treatment options and a cure for brain tumors.

22 Battery Street, Suite 612,
San Francisco, CA 94111-5520
Brain Tumor Information Line: 1.800.934.CURE (2873)
nbtf@braintumor.org

National Brain Tumor Radiosurgery Association
Support organization for patients who have undergone radiosurgery for the treatment of various brain tumors. Includes a discussion board for radiosurgical topics and information on the application of radiosurgery for various brain tumors.

Johns Hopkins Radiosurgery
401 N Broadway, Weinberg 1469
Baltimore, MD 21231-2410

National Institute of Neurological Disorders and Stroke
A division of the National Institute of Health, this site offers an extensive list of disorders of the brain, information on research, and news on the latest advances in the management of neurological disorders.

P.O. Box 5801
Bethesda, MD 20824
800-352-9424

Trigeminal Neuralgia Association
The number one resource on TN and related facial pain conditions for patients, their families, doctors and other medical professionals, policymakers, and the public.

925 Northwest 56th Terrace, Suite C
Gainesville, FL 32605-6402
800-923-3608

National Spinal Cord Injury Association (NSCIA)
1 Church Street #600
Rockville, MD 20850
(800) 962-9629
(301) 214-4006
Fax:  (301) 990-0445

United Spinal Association
75-20 Astoria Boulevard
Jackson Heights, New York 11370
info@unitedspinal.org
800-404-2898
718-803-3782
Fax: 718-803-0414

Spinal Cord Tumor Association, Inc. (SCTA)
P.O. Box 461
Jay, FL  32565
850-675-6663
Fax:  850-675-4934

 
 
Local Organizations
 

American Cancer Society
920 Pierremont, Suite 300
Shreveport, LA 71106
318-219-1668
Fax: 318-865-4831
800-ACS-2345

Feist-Weiller Cancer Center
LSUHSC Shreveport

1501 Kings Highway
PO Box 33932
Shreveport, LA  71130
318- 813-1409

NW Louisiana Brain Injury Support Group 
For survivors of brain injury, families, friends, medical professionals.   

First Tuesday of the month, 7 p.m.
Summit Hospital
4900 Medical Drive
Bossier City
318-934-0533

Third Tuesday of each month, 7 p.m.
St. Luke's United Methodist Church,
6012 Youree Dr.
Shreveport
318-934-0533

Stroke Survivors & Caregivers Support Group
For survivors of strokes, families, friends, medical professionals.

Lagniappe Hospital
1800 Irving Place, #100
Shreveport, LA  71101
2nd floor Conference Room 
318-934-0533

Think First: National Injury Prevention Foundation
Educational Programs for Reducing Injury

960 Sheridan Ave. Suite A
Shreveport, LA 71104
think1st@bellsouth.net
318-226-0066

 

 
 
Neurosurgery-Related Websites
 

American Association of Neurological Surgeons (AANS)

Congress of Neurological Surgeons (CNS)

Neurosurgery On Call

Neurosurgery Online

Louisiana Neurosurgical Society (LANS)

Society of University Neurosurgeons (SUN)

Southern Neurosurgical Society (SNS)

American Society of Interventional and Therapeutic Neuroradiology